Hospice, when it was started, was a concept rooted in the centuries-old idea of offering a place of shelter and rest, or "hospitality" to weary and sick travelers on a long journey. Today, hospice care provides humane and compassionate care for people in the last phases of incurable diseases like people with stage 3 and stage 4 mesothelioma cancer so that they can live their last days on earth as fulfilling and comfortable as possible.
Hospice is a philosophy of care. The hospice philosophy or viewpoint accepts death as the final stage of life. The goal of hospice is to enable patients to continue an alert, pain-free life and to manage other symptoms so that their last days may be spent with dignity and quality, surrounded by their loved ones. Hospice affirms life and does not hasten or postpone death. Hospice care treats the person rather than the disease; it focuses on quality rather than length of life. Hospice care is family-centered care.
The patient and family are the ones making the decisions. Care is provided for the patient and family 24 hours a day, 7 days a week. Hospice care can be given in the patient's home, a hospital, nursing home, or private hospice facility. Most hospice care in the United States is given in the home, with a family member or members serving as the main hands-on caregiver.
Hospice care is meant for the time when your cancer is so advanced that treatment will no longer give you any notable benefit, and you have a limited lifespan of less than six months left to live. Hospice offers you palliative care, which only helps to relive the mesothelioma cancer symptoms and not cure the cancer; its main purpose is to improve your quality of life. You, your family, and your doctor decide together when hospice cares should begin.
Cancer patients do not start hospice care early enough. Sometimes the doctor, patient, or family member will not want to start hospice because he or she thinks it means you're giving up, or that there's no hope. This is not true. If you get better or the cancer goes into remission, you can be taken out of the hospice program and go into active cancer treatment. You can go back to hospice care at a later time, if needed. The hope that hospice brings is the hope of a quality life, making the best of each day during the last stages of advanced illness.
These are some important points about hospice care:
-They are a team of professionals
In most cases, an interdisciplinary health care team manages hospice care. This means that many interacting disciplines work together to care for the patient. Doctors, nurses, social workers, counselors, home health aides, clergy, therapists, and trained volunteers care for you. Each of these people offers support based on their special areas of expertise. Together, they then give you and your loved ones complete palliative care aimed at relieving symptoms and giving social, emotional, and spiritual support.
They offer pain and symptom control
Pain and symptom control helps you to live the remainder of your life as comfortable as possible thus allowing you to stay in control of and enjoy your life. This means that side effects are lowered to an extent that you are as free of pain and symptoms as possible, yet still alert enough to enjoy the people around you and make important decisions.
They offer spiritual support
Hospice care also tends to your spiritual needs. Since people differ in their spiritual needs and religious beliefs, spiritual care is set up to meet your specific needs. It may include helping you to look at what death means to you, helping you say good-bye, or helping with a certain religious ceremony or ritual.
Home care and inpatient care
Although hospice care can be centered in the home, you may need to be admitted to a hospital, extended-care facility, or a hospice inpatient facility. The hospice can arrange for inpatient care and will stay involved in your care and with your family. You can go back to in-home care when you and your family are ready.
While you are in hospice, your family and caregivers may need a break, they may need some time away from the chores of taking care of you.. Hospice service may offer them a break through respite care, which is often offered in up to 5-day periods. During this time you will be cared for either in the hospice facility or in beds that are set aside for this in nursing homes or hospitals. Families can plan a mini-vacation, go to special events, or simply get much-needed rest at home while you are cared for in an inpatient setting.
Through regularly scheduled family conferences, often led by the hospice nurse or social worker, family members can stay informed about your condition and what to expect. Family conferences also give you all a chance to share feelings, talk about expectations, and learn about death and the process of dying. Family members can find great support and stress relief through family conferences. Conferences may also be done informally on a daily basis as the nurse or nursing assistant talks with you and your caregivers during their routine visits.
Bereavement is the time of mourning after a loss. The hospice care team works with surviving loved ones to help them through the grieving process. A trained volunteer, clergy member, or professional counselor provides support to survivors through visits, phone calls, and/or letter contact, as well as through support groups. The hospice team can refer family members and care-giving friends to other medical or professional care if needed. Bereavement services are often provided for about a year after the patient's death as it takes most people about a year to get over the grief of losing a loved one.
Bello kamorudeen. http://www.mesotheliomacorner.blogspot.com